Baby Maya

I have posted on several occasions about Baby Maya, KJ's NICU BFF. Here's a little about Maya's story from her mom Kristy!

Its been SO LONG!

Wow, I didn't realize how long it has been since I posted on KJs blog. Time has surely flown by. There have been a few ups and downs since I last posted so I will do my best to update on all but they will probably not be in the order that they occurred, sorry.

KJ has been released from ALL therapy! Praise God! I was (still am) nervous about the ending of her therapy. Her therapist have been a part of our family and a big part in her great success. None wanted to stop seeing her but all said that on there visits they just played...she already knew everything!

KJ has still been battling recurring pneumonia the entire winter season. Just last week she had to go to the ER again with her 3rd cause this season of pneumonia. It was nothing but God that I was able to get an appointment scheduled with her pulmonologist and within a week she has having a CT scan of her lungs and a bronchoscopy. The CT scan showed that her lungs were completely covered with pneumonia (all but an area in her lower left lobe) and her bronchosocpy showed that she has some airways that are not fully opened and that she has some indications of reflux or aspiration in her bronchial tubes.

Treatment: for the pneumonia she has PIC line (long term IV) in her arm so she can receive IV antibiotics for the next few weeks. For the reflux or aspiration she will be started in nexium for reflux and will have a swallow test to see if she is aspirating (if food is getting into her broncial tubes).

Sounds like a lot but after a few rough days KJ is back at daycare, running and jumping around! KJ is truly a fighter and gives me strength everyday. Someone said to me the other day..."Wow, she is such a fighter, she has so much will, she will grow up to do great things!" And I believe God has a wonderful plan for her and this is all just her testimony!

Be blessed!

Birthday and Halloween Pictures

Happy Birthday Kaiya Dawn!

Whew....2yrs

On October 29 KJ turned 2. Boy how time has flown by and how blessed we have been. KJ is doing so great....even better than anyone expected. Thank you all for the prayers and support over the past two years. Through your prayers she was able to beat man's expectations of her and show truly what God can do! We love you all.

The Week Ahead

Just wanted to post a quick update on KJ. This week she will be fitted, hopefully, for braces just to sleep in. We think that she needs the support but don't want to slow her down or frustrate her by making her wear braces during the day. Also, we will be discussing with her ENT on taking her adnoids out. I just don't see this winter going good if we don't. As soon as she gets a hint of sniffles she gets super congested and this time even anitbiotics didn't clear it up. So prayers needed this week! Will update at the end of the week with results.

Learning new things

When I think back to the NICU and being told that KJ would be delayed, all I could do was prepare myself for it. I was more than ready to handle what was to come if we just made it out of the NICU. And here today KJ is doing better than I now I ever expected. She is counting, learning her colors (she may not get the color correct but she will name one lol), singing, dancing, and is an all around silly silly almost two year old. I couldn't have prayed for more if I tried. Matter of fact, I prayed solely to make it out of the NICU and the strength to handle what was to come after.

I will tell anyone the amazing story of KJ because I know without a doubt that it was God that got her through the NICU and to this point. And while KJ grows up daily and learns new lessons, I can't help but wonder how Kaiya would be now. But I know that she is with KJ daily and I am sure what fighting hard for her sister in heaven.

While blog post a farther between now I do hope that while prayers are still being prayed for KJ we don't forget that she did not start this journey alone. Kaiya Dawn will always be an important part in KJs journey.

Walking and Talking

WOW! I had NO idea it had been so long since I posted, I hope there are still people that check. Kaidyn is doing sooooo good. She's walking and talking so much now. She is down to one session a month with all her therapies. She is in a new daycare right now and has just taken off. She is learning so much. She comes home singing songs, drawing, and talking about her day. And best of all she out by 8:30 hahaha ok not the best of all but that does help me :). I will post pics via my phone soon! Love you all for following the blog and thanks for all your prayers!