Evaluations and such

This week Kaidyn finally had her Cerebral Palsy evaluations. She saw neurology, orthopedics and physical medicine and rehab and they all agree that Kaidyn does have a mild form of cerebral palsy, periventricular leukomalacia (PVL) to be exact. They are confident that she will walk and have very little difficulty with day to day activities. They noted her muscle tightening and said her hips are not normally placed. All this will be a constant battle and right now we are unsure how it will play out. They plan is to just watch and see how it affects her as she grows. Therapy will continue as is and we will explore other treatments and therapies as needed.

Kaidyn also had a pulmonology appointment and she is doing great. Her pulm. doctor does want her to use an inhaler twice a day to help with her lungs. They believe she has asthma but she is too young to officially diagnose. So with her inhaler with got a spacer and a new friend named Spinner (her duck mask). The inhaler and spacer are used together since of course she can't use an inhaler properly.

Please continue to pray for Kaidyn as she continues to overcome obstacles that come her way. I will continue to update on Kaidyn's progress so please continue to check the site. Love you all and thank you for praying and following Kaidyn's story.

A Quick Update

Just a quick update! Kaidyn is doing great! She is getting over pneumonia (prayerfully). She has been on antibiotics for soooo long so hopefully we are done! With antibiotics comes horrible diaper rash and loss of hair so pray for her please. She has been doing great with her leg braces and is starting to cruise, stand, and push/walk with her toys. I will see about trying to post a video of her so those not friends on facebook can see her live! Thank you all for following her story and praying daily.

Kaidyn has been doing overall good. She has been doing good with her ear surgery...tubes are bright blue and clear. She has been having a really bad cough for a while and it never tends to really go away. We are in the process of seeing what the cough is and why nothing is clearing it. Her pulmonary doctor is exploring the asthma route. So right now we do 2x daily breathing treatments. Yay! She has her first cerebral palsy evaluation scheduled for March 31 in Temple. So prayers needed for that. She also has a speech evaluation on Friday. Many evaluations still ahead so many prayers still needed!

Ears Are Clear

Well, KJ's ear procedure went well and post op was great! Tubes still in place. I think she is still having some upper respirtory issues. I was hoping they were related to the excess fluid in her ears but it appears its not. So, we will find out more next week when we follow up with pulmonary in Temple. Keep ya posted!

I haven't forgotten about pictures!

Surgery-Tubes

This Friday, Feb. 4th Kaidyn will be having tubes put in her ears. Please pray for her, the doctors and the nurses. Her pedi says that he thinks her speech will increase extremely once these tubes are in because she has had some much fluid in them for so long.

Keep in mind that in the coming months she will be having her CP evaluations. I'll keep you all updated as those are scheduled and results are in.


P.S. I realize I haven't put pictures on the blog in a while. Stay tuned.....

Our Week of Doctors

So this has been a busy/tiring week for us. As stated in the previous blog KJ had to go to the ER Monday night. After doing the follow-up with her doctor we determine that more than likely she didn't have a febrile seizure. Thank Goodness! So she still just has the double ear infection. She will need to have tubes placed in her ears so we have scheduled that for the beginning of Feb. Thursday we then had to go to Temple for our quarterly NICU follow-up visit. The OTs said she is doing great! She right on target with everything developmentally. The NNP said that she is doing good as well but would like for her to have an evaluation with the Cerebral Palsy Clinic and get a CP evaluation. Mostly due to her high muscle tone. She also had an appointment with Pulmonalogy who wants to try a few things to see if we can get her to start breathing better especially at night. She was also ordered to have an EKG done. So we go back to Pulmonalogy in Feb. to check her progress.

Please pray for all of her upcoming test. We all know her journey and knew it would end at the NICU doors. So continued prayers are needed.

First Trip to ER

Kaidyn had her first trip to the ER last night. She has, yet again, another ear infection. After taking her to her pedi doctor and ENT yesterday it was determined she is going to need tubes put in both ears. By mid day she had a fever again but it was decreasing. Later that night she started having a hard time breathing and her lips started to turn blue. We took her to the ER and they believe she had a mild febrile seizure. It happens when the fever gets to high and the brain spasms a little. She's doing ok now and has no fever. Please pray for her and her health right now. I knew this winter season was going to be hard but I no idea it was going to be this hard.