Tuesday, April 19, 2011
Kaidyn is doing so great. She is getting sillier by the day! She LOVES to make people laugh! She is starting to do several words in sign language. She knows please, more, eat, all done, and milk. Those are the ones she knows well. We are working on shoes and thank you. She is starting to walk while holding your hands and her therapist want us to work on her walking while we hold only one hand. Pretty soon she will be walking by herself.
Tuesday, April 12, 2011
Breathing treatments are back again. We have been doing the inhaler since her pulm. appointment on 4/1. She's had some ear drainage (yuck!), wet cough, nasty nasty nose, watery eyes, etc. It's like a mix between allergies and something respiratory. So we are back to it all. I really thought tubes would stop this. Wishful thinking! Now if only I could find a way to make her sit like a big girl during her ENTIRE breathing treatment. :/
Sunday, April 3, 2011
This week Kaidyn finally had her Cerebral Palsy evaluations. She saw neurology, orthopedics and physical medicine and rehab and they all agree that Kaidyn does have a mild form of cerebral palsy, periventricular leukomalacia (PVL) to be exact. They are confident that she will walk and have very little difficulty with day to day activities. They noted her muscle tightening and said her hips are not normally placed. All this will be a constant battle and right now we are unsure how it will play out. They plan is to just watch and see how it affects her as she grows. Therapy will continue as is and we will explore other treatments and therapies as needed.
Kaidyn also had a pulmonology appointment and she is doing great. Her pulm. doctor does want her to use an inhaler twice a day to help with her lungs. They believe she has asthma but she is too young to officially diagnose. So with her inhaler with got a spacer and a new friend named Spinner (her duck mask). The inhaler and spacer are used together since of course she can't use an inhaler properly.
Please continue to pray for Kaidyn as she continues to overcome obstacles that come her way. I will continue to update on Kaidyn's progress so please continue to check the site. Love you all and thank you for praying and following Kaidyn's story.