So this has been a busy/tiring week for us. As stated in the previous blog KJ had to go to the ER Monday night. After doing the follow-up with her doctor we determine that more than likely she didn't have a febrile seizure. Thank Goodness! So she still just has the double ear infection. She will need to have tubes placed in her ears so we have scheduled that for the beginning of Feb. Thursday we then had to go to Temple for our quarterly NICU follow-up visit. The OTs said she is doing great! She right on target with everything developmentally. The NNP said that she is doing good as well but would like for her to have an evaluation with the Cerebral Palsy Clinic and get a CP evaluation. Mostly due to her high muscle tone. She also had an appointment with Pulmonalogy who wants to try a few things to see if we can get her to start breathing better especially at night. She was also ordered to have an EKG done. So we go back to Pulmonalogy in Feb. to check her progress.
Please pray for all of her upcoming test. We all know her journey and knew it would end at the NICU doors. So continued prayers are needed.
Tuesday, January 4, 2011
Kaidyn had her first trip to the ER last night. She has, yet again, another ear infection. After taking her to her pedi doctor and ENT yesterday it was determined she is going to need tubes put in both ears. By mid day she had a fever again but it was decreasing. Later that night she started having a hard time breathing and her lips started to turn blue. We took her to the ER and they believe she had a mild febrile seizure. It happens when the fever gets to high and the brain spasms a little. She's doing ok now and has no fever. Please pray for her and her health right now. I knew this winter season was going to be hard but I no idea it was going to be this hard.