So this has been a busy/tiring week for us. As stated in the previous blog KJ had to go to the ER Monday night. After doing the follow-up with her doctor we determine that more than likely she didn't have a febrile seizure. Thank Goodness! So she still just has the double ear infection. She will need to have tubes placed in her ears so we have scheduled that for the beginning of Feb. Thursday we then had to go to Temple for our quarterly NICU follow-up visit. The OTs said she is doing great! She right on target with everything developmentally. The NNP said that she is doing good as well but would like for her to have an evaluation with the Cerebral Palsy Clinic and get a CP evaluation. Mostly due to her high muscle tone. She also had an appointment with Pulmonalogy who wants to try a few things to see if we can get her to start breathing better especially at night. She was also ordered to have an EKG done. So we go back to Pulmonalogy in Feb. to check her progress.
Please pray for all of her upcoming test. We all know her journey and knew it would end at the NICU doors. So continued prayers are needed.